Resources

Resources Built By and For the Chiari Community

April 4, 2025

Over the years we’ve heard you — your questions, your ideas, your needs. We listened. We heard your questions. We read your stories. We studied your struggles. And then we got to work building what didn’t exist. Today, we’re proud to unveil two transformative resources: Chiari Strong Magazine and the Chiari Strong Survivors’ Circle — created exclusively for Chiari Malformation survivors and the families, caregivers, and advocates who walk this path beside them. These new digital spaces are tools for healing, visibility, empowerment, and meaningful connection. Tailored directly to the needs our community expressed, these platforms cut through the noise of traditional social media and get straight to what matters most. These are not generalized platforms attempting to include Chiari voices — they are exclusive environments where those voices lead.

Chiari Strong Magazine serves as a digital media outlet highlighting survivor stories, wellness strategies, medical insights, original features, and thought leadership centered entirely around life with Chiari. Readers can expect meaningful, medically mindful, and emotionally intelligent content — all delivered through the lens of real people living the Chiari experience.

The Chiari Strong Survivors’ Circle offers a private, peer-verified online community that is private to outside users and fully protected from unrelated content, noise, and misunderstanding. Only verified members of the Chiari survivor and supporter community can access the Circle — ensuring a safe, focused, and deeply relatable space for conversation and care.

You can find more general information about these incredible resources by reading the Chiari Strong Magazine and great detail once you're inside the group.

Let’s rise. Let’s build. Let’s thrive.

— Your Chiari Strong Team